The Registry is led by Dr. Jack Priest. He and his colleagues including oncologists, pathologists, pediatricians, scientists, and data analysts from many institutions have been working together for almost 20 years to improve the diagnosis and care of children with PPB. The Registry’s main bases of operation are the Childrens' Hospitals and Clinics of Minnesota, St. Paul, Minnesota and Barnes-Jewish and St. Louis Children's Hospitals, St. Louis, Missouri.
 
The mission of the Registry is to seek and enroll all patients diagnosed with PPB, to provide expert pathologic review, and to collect clinical and outcome information. In turn, the Registry provides clinicians and families with treatment recommendations based on rigorous study of all available data. To learn more about PPB visit the Registry website at www.ppbregistry.org. There are no charges for any services from the Registry.
 
The Registry also supports clinical, basic and translational science initiatives designed to find the cause of PPB. The International Pleuropulmonary Blastoma Registry’s research program is supported by Children’s Hospitals and Clinics of Minnesota and Washington University Medical Center. It has been funded since 1987 by an annual charity tennis tournament, the Pine Tree Apple Tennis Classic, dedicated to research in pediatric oncology and by the Theodora H. Lang Charitable Trust. It is entirely non-profit, interested only in clinical and scientific advancements.