Friday |
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5:00 - 8:30 p.m. |
Welcome Reception and Registration |
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Saturday |
7:30 - 9:00 a.m |
Breakfast |
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9:00 - 9:05 a.m |
Welcome to St. Louis
D. Ashley Hill. M.D.,
Washington University |
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9:05 - 9:45 a.m. |
The Evolution of PPB as a Diagnosis: An Eleven Year Story
Louis (Pepper) Dehner, M.D.
Washington University Department of Pathology and Immunology |
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9:45 - 10:30 a.m. |
Updates from The International PPB Registry
John R. (Jack) Priest, M.D.
The International PPB Registry |
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10:30 - 11:00 a.m. |
Snack Break |
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11:00 - 11:45 a.m. |
Question and Answer Session with Drs. Priest and Dehner
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11:45 - 1:00 p.m. |
Lunch |
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1:00 - 1:30 p.m. |
What Do We Know About Families Coping With a Child's Serious Medical Illness?
Susan Sylvia, Ph.D., Child Psychologist
St. Louis Children's Hospital |
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1:30 - 4:00 p.m. |
Topical small group discussions
Dr. Susan Sylvia and Dr. April Neeson and Staff |
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Parents, children, siblings, all |
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6:15 - 9:15 p.m. |
Dinner Event at the St. Louis Science Center |
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Sunday |
7:30- 9:00 a.m |
Breakfast |
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9:00 - 9:30 a.m. |
Genes and Childhood Cancer
Alison Whelan, M.D.,
Medical Geneticist, Co-Director Hereditary Cancer Core,
Siteman Cancer Center |
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9:30 - 10:00 a.m. |
Finding the Cause of PPB: Where Do We Go From Here?
D. Ashley Hill, M.D.
Washington University Department of Pathology and Immunology |
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10:00 - 10:15 a.m. |
A Few Words About the PPB Genetic Study
Jennifer Ivanovich, M.D.,
Genetic Counselor
Hereditary Cancer Core,
Siteman Cancer Center |
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10:15 - 10:45 a.m. |
Snack Break |
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10:45 - 11:00 a.m. |
Tribute to Children with PPB |
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11:00 - 12:00 p.m. |
And Now a Word From Our Families
Family Presentations |
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12:00 p.m. |
Meeting Wrap Up
D. Ashley Hill, M.D. |
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12:00 - 3:00 p.m. |
Genetic Study Enrollment |
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12:00 a.m. |
Pick up your box lunches
Free time for family sightseeing |
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*Supervised activities for kids will be arranged during the Saturday and Sunday morning Scientific Sessions.
